“But I am like an olive tree flourishing in the house of God; I trust in God's unfailing love for ever and ever”. Psalm 52:8

5/16/2012

Congratulations to all mommies!



Yet you brought me out of the womb; you made me trust in you, even at my mother's breast. From birth I was cast on you; from my mother's womb you have been my God.
Psalm 22:9-10



meu maior presente!

For you created my inmost being; you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14
 




 Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be. Psalm 139:16

 

 
It is an immeasurable joy for us to spend another Mother's Day with the sweet presence of our little princess. She's fine, just had some bad days with the growth of canines - now she has almost all the teeth, missing only the second molars. We also just discovered a new urinary tract infection, this time being asymptomatic and treated early, at home, thank God.
All mothers know that there is not one particular day that counts, but all the special moments we spend with our children and also to know that they are doing well. Last Sunday I was remembering the unforgettable moments of pregnancy, the first ultrasounds to see our baby, the first kicks, the first moments as she was born and I could see her, touch her, kiss her ... those were the best mother's days I could have lived!
I never imagined I would live so many days with my princess, it was all a dream so far away, a desperate prayer. Being able to give her a bath, change a diaper, cherish her in my arms when she  had a colic were simply sublime and unimaginable moments.
This Mother's Day also has many things to celebrate, because a few months ago our Vitoria fell ill and had to be hospitalized twice due to complications of urinary infection. Once again we saw God manifesting miracles and confirming that Vitoria is only alive because he really wants and has a wonderful plan for her life. Everything we can do for her is only because God has given us the privilege of caring for her, loving her, fighting with her and share her beautiful life path. So we are very grateful to him that this cute and sweet girl is here with us and now, also smiling and expressing her happiness and well-being for us!


Unfortunately every now and then some people who visit this blog superficially leave very offensive comments for me, from a deeply arrogant and ignorant point of view, accusing us of cruelty for having allowed our beloved daughter to be born and live as if we were forcing her to live and suffer. Vitoria is not a child suffering and does not need anyone's pity, but only needs the love of her family and respect of others.

Not only do I feel so sorry and mercy of these people who feel entitled to throw stones at us without any foundation, perhaps wanting to justify themselves of something, accusing us.

Cruelty would have been break her in pieces inside my uterus by fear and selfishness, or throw her violently from my womb when she was growing up safe and quiet, for considering her inconvenient for me, since she was so fragile and wasn't considered "normal" for society. Receiving this rare jewel in my life was the most wonderful decision of my life, because she has taught me the greatest lessons of life, courage, sweetness and determination, things I would never have learned if I had thought only in my own interests. Unfortunately not all people are prepared to understand and accept these differences, and it is very regrettable that these people lose valuable opportunities, keeping their lives immersed in mediocrity.


 
The fact is that Victoria has the same right to live that anyone else who is reading this blog, and we have the same responsibility to love her and protect her as any other parents have for their children. Vitoria has never been forced to live, she has always lived by herself showing that her condition was not incompatible with life, as many claim emphatically. Vitoria loves life, in every new second of her life she shows us that she wants to live and wants our support for this. She is deeply loved and is fully aware of how much she is loved. She can express when she is in pain or joy, and she has expressed great joy at each new step overcome. It has been a great challenge for us because we did not abandon her even for a second on her fight. But we never regret of having just respected her life and given her the opportunity to be born and to show by herself what were her limits. Yes, she has many limitations, but she can live and she will remain alive while her Creator desires, even if her life does not please some people who seem to have a God in their belly and assume the right to dictate who should live or not. Fortunately our princess is here very close to us and safe, away from these cruel people and only God will decide about her life.

I'd like to leave a big hug to all mothers, especially my mother who is so wonderful and dedicated, even I being an adult and living far away, she is still so lovely, she worries and  takes care of me and Vitoria. And also to my mother in law whom I greatly admire, I am grateful and I carry with love in my heart.

And to all special moms, those who have their children physically present with them, or only in their hearts, but no less intensely present, that are worthy of being called MOTHERS forever. May God bless you!

I also greatly thank all the readers that leave messages of support and encouragement and to all who write to say they pray for Vitoria and thank for keeping this blog in English. I apologize because I can not always answer these messages, but all these kind words are kept in my heart. This blog is for you!




I want the whole bed for me!









cute and chubby mom's girl!

 


 

new hairstyle with long hair

 


she wins our hearts more and more each day!






16 comments:

  1. I thank God for beautiful Vitoria and I learn so much from your journey with God through all of this blessed time with Vitoria...God is ffaithful and He alone gives life. Praise God!!

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  2. Oh, Darling Vitoria, you are pure sunshine! What precious photos! They make me smile from deep within my heart! Blessings to you and your beautiful Mommy and Daddy!

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  3. Every day I'm looking for new information about how is she feeling now!
    Hugs and kisses from Poland.
    Be strong for your Princess!
    :)

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  4. Well said about the people that leave negative comments or feel sorry for her. I work with a population of children, that are very close to Vittoria's limitations although with all different diagnosis's. I can not stand when people say they feel sorry for the children I work with. I don't. They are happy, beautiful children. Just like your daughter.
    Tracie from Youngsville, NC USA

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  5. What a unique and special kid she is. I am truly sorry to hear about the ignorance people postings. She does suffer, like people assert, but from some infections, and from having some impairments. Unfortunately, I can think of twenty people off the bat who suffer a lot more, and their lives are just as valid. Should I die because I take chemotherapy for systemic lupus that threatens my life every week? This child is loved, and happy, and filled with spunk. I can see the naughty attitude in her eyes, and the love and happiness in them, too. With her long hair, her reduced cranial size is helped greatly. She looks fantastic, and beautiful, truly. Her big almond eyes, and those striking eyebrows... She is lucky, and you are lucky, and this world is lucky. Is the dear child cognitively impaired, by chance, because of missing portions of brain? She seems to have very complex emotions and desires if that is the case, thus further dispelling the myth of anencephaly being a death sentence. Just because something always has been does not mean it always will be. Animals, people and all forms of life are part of this universe and entitled to the sanctity and right to exist, therein. I wish continued general health for Vitoria, and thank you for showing people that life, no matter how different, is not disposable. Her life serves as inspiration and example that nothing is set in stone, and nothing is impossible, and nothing is absolute. Roll around, and laugh, and enjoy your life, kiddo, because you are loved and admired!

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  6. your daughter and her story are beautiful! THANK YOU for showing your faith through all this. God is good, isn't he?

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  7. I don't know how I came across your blog but I want to tell you that your story is inspiring. You are truly loving parents, given a difficult situation, and yet are able to see the beauty in it. I feel sad for the people who write negative things, because they don't know what humanity is all about. Many healthy children are not as loved as your daughter is and she is truly lucky to have you as parents. And, you are lucky to have her.

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  8. Happy belated mothers day! Thank you for continuing to update us on your sweet and beautiful girl. I lost my baby girl at 16 weeks in utero to anacephaly. I am encouraged by Vitoria's story, and that this diagnosis is NOT 100% incompatible with life as the doctors kept telling us. I hope stories like hers help change dr's attitudes and advice they give to expecting moms. Blessings to you and your family.

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  9. Oh, these people...
    We should feel sorry for them, because it´s THEM who are too handicapped to really LIVE and LOVE. But I can´t help, it makes me angry, too. Because I know, how it hurts you.
    I send you a big hug and one for beautiful vitoria, too,

    iko

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  10. I will never understand why people can be so cruel. Vitoria is a joy and her presence in this life and this world is moving mountains of hearts! Because of her lovely sweetness and her desire to live, she is showing other parents with unborn babies that God, indeed, has a plan! Blessings to you! Just remember, the cruelty of humans only comes from those with empty hearts.

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  11. Vitoria has the most beautiful eyes I have ever seen!
    Your family's story has brighten my day!
    Thank you for sharing with all of us!

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  12. Her eyes capture the heart. What a precious gift.

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  13. Beautiful story, beautiful little girl, and the prettiest big blue eyes i've ever seen.

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  14. Thank you for your Blog. Your daughter is beautiful, and so are you. I like your Spirit! May God bless you...Wait! He already has!

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  15. Beautiful, I will be praying for your family.

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  16. What a perfect little girl! ❤️

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We thank all comments of encouragement and love.

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