“But I am like an olive tree flourishing in the house of God; I trust in God's unfailing love for ever and ever”. Psalm 52:8


Strength in my soul

I will give you praise with all my heart: I will make melody to you before the gods. I will give worship before your holy Temple, praising your name for your mercy and for your unchanging faith: for you have made your word greater than all your name.


When my cry came to your ears you gave me an answer, and made me great with strength in my soul.
Though the Lord is high, he sees those who are low; and he has knowledge from far off of those who are lifted up. Even when trouble is round me, you will give me life; your hand will be stretched out against the wrath of my haters, and your right hand will be my salvation.

The Lord will make all things complete for me: O Lord, your mercy is eternal; do not give up the works of your handsPsalm 138

Here are some recent pictures of our sweet and beloved Vitoria. We feel we are so blessed with her life, it is a great privilege for us to be her parents and to love her. It is so wonderful and a great joy to be with her that all challenges we have seem to be so small. It´s the most beautiful and amazing expierence of my life. Now, we have no doubts she recognizes us, she communicates with us, she  expresses what she likes or not, and she expresses she feels loved. I learn a lot with her, with her strength, with her peace, her sweetness. She knows how much she is loved for God and for us, and that´s enough for her. It is something like a different language, the language of unconditional love, that we use to talk with her, and she understands it perfectly.

And I am so happy and thankful that there are so many people everywhere that understand this love!

I´d like to thank with all my heart everyone who visits Vitoria´s blog, who lets lovely messages, who follows and link her story, who pray for her. You have encouraged me many times to keep on this blog, to keep on writing about her, and also encouraged me to be strong in the difficult moments.

I am sure God sent her for us with a wonderful purpose, to help us to understand his unconditional love, to learn how to love, how to live, to give importance to the right things in our short life in this world. I hope with Vitoria´s life so many people can also learn with us about God´s unconditional love. I hope and I pray that more families can feel encouraged to love and accept their babies even with a difficult diagnosis or a fatal condition, and to enjoy all possible and precious time with them.

That´s why I decided to create a blog in English, because I believe much more families could learn about Vitoria and be touched for her story.

I haven´t been able to write very often here, since I need a bit more time to write in English, than in portuguese... I´d like so much to share more about our amazing experiences with Vitoria, to express more about our feelings and thoughts in this beautiful journey, as I use to do in portuguese. But I believe her life and her pictures speak by themselves and God can use them to touch other hearts, even that I wasn´t able to write even one only word iu English.

So, here are some pictures, also from a few days ago, when she was still a bit angry about her growing teeth...

She was angry and complaining a lot

time to play and exercise

on the ground!

 take a look at my teeth!

 little princess
time to sleep!


  1. You are an amazing gift from God Miss Vitoria!

  2. She is beautiful and has so much hair! Thank you for sharing her with us!

  3. Amazing! Thank you for sharing Victoria's story.

  4. she is so cute and beautiful
    I love too see her story and see how much you love her :-)

  5. she is so cute and beautiful and to see your love too her is so speciel :-)

  6. Wow that is amazing. I had a question, is she the longest surviving baby with this condition?

    That is amazing! I'm touched, especially when we live in a society where any child can be discarded and it is refreshing to see a child with such a condition still have such life in her and parents who value life the way you all do! Very refreshing in this world.

  7. Vitoria touched my heart so deeply when I first discovered her story on You Tube. I love to watch her beautiful little face, the miracle of her life, and to see her loved so deeply by you, her parents. I hope to continue to see her grow and become even more beautiful every day. She's precious to behold! I wish I didn't live so far away. I would love to meet your amazing family.

    Blessings, Carrie


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We thank all comments of encouragement and love.

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