We created this blog to tell the world about our beloved daughter Vitoria, who with acrania and anencephaly, lived with us for wonderful 9 months of pregnancy and exciting 2 ½ years of life outside the womb. May everyone know about her sweetness and tenderness. About her life, humanity and dignity. All the precious lessons learned with this little angel that God has sent us. It was a joy to have her with us. Vitoria still lives in our hearts and it will always be an honor to be her parents!
“But I am like an olive tree flourishing in the house of God; I trust in God's unfailing love for ever and ever”. Psalm 52:8
Smiling to life
Be glad in the Lord at all times: again I say, Be glad. Let your gentle behaviour be clear to all men. The Lord is near. Have no cares; but in everything with prayer and praise put your requests before God. And the peace of God, which is deeper than all knowledge, will keep your hearts and minds in Christ Jesus.
Vitoria smiling with daddy
It is the same to me if I am looked down on or honoured; everywhere and in all things I have the secret of how to be full and how to go without food; how to have wealth and how to be in need. I am able to do all things through him who gives me strength. Philippians 4:4-7; 12-13
Our beloved Vitoria is pretty good! The only inconvenient is that we are having a very hot summer this year in Brazil, and she is suffering a bit. Usually, she can keep a good temperature by herself, but sometimes, when it is very hot, she has some problems, she gets very hot and extremely angry. So I need to be aware to let her cool, only with diaper and no clothes, or give her a cold bath.
We have also very good news: Marcelo started a new job two weeks ago! We thank our Lord for the way everything happened; it was a very simple and easy process. We thank everybody who prayed for us and we ask please that you keep on praying so that everything works well in this new job.
Our precious daughter is having many progresses: she´s everyday more expressive and perceptive. She is answering much more to our voice, turning her head in our direction when we talk to her, crying much more, even yelling when she needs something. Since she was one month at home, she sleeps alone in her own bedroom. She used to sleep the whole night, but lately she is giving me some work, waking at night crying. She needs to sleep with a special boot for correction of her club-foot, and sometimes she cries until I take the boots off. She also discovered that, if she turns her legs many times, she can take the boots off too - sometimes I only realize she did it in the morning!
She is also smiling when we play and cherish her! It is a discreet smile, but enough to let our hearts overflowing with joy, knowing she is happy and she feels loved. She cries when some strange person takes her, and stop crying when I take her - this is so amazing!
she likes to grab her dress
She has a strong personality. She knows exactly what she likes or not, she has her favorite foods, her favorite position to sleep, to stay in our arms.. there are moments when she closes her mouth and doesn´t want to eat, and in other moments she eats everything and asks more. When she is angry in our arms, she pushes us with her hands, and even pinches us!
Another good news is that, last week, she got her first tooth! I never imagined a tooth would make me so happy, though she´s been a bit angry and having troubles to fall asleep, and I suspect soon she will get another tooth. She puts her tongue out and doesn´t let anyone see the teeth, so I guess I won´t take pictures of them so early. Everything in her is a surprise, and we are happy she started teething in the right time.
I am very involved looking for a good institution to take her, a place that can offer her all therapies she needs, to help her neurological, sensory and physical development, so that I don´t need to take her everyday in a different place, sometimes to be assisted by doctors that are not well prepared to her condition. I will have an interview in an excellent institution on March, 1st, and we are praying that God open the doors of this institution for us, if it is the best place for Vitoria.
We know God is in control and will guide us to the best place, in the best moment, so that we can offer the best for her. While we wait in Him, we live one day after another, to enjoy at most all happy moments we´re living with our precious baby girl.