Our Beloved Vitoria de Cristo

We created this blog to tell the world about our beloved daughter Vitoria, who with acrania and anencephaly, lived with us for wonderful 9 months of pregnancy and exciting 2 ½ years of life outside the womb. May everyone know about her sweetness and tenderness. About her life, humanity and dignity. All the precious lessons learned with this little angel that God has sent us. It was a joy to have her with us. Vitoria still lives in our hearts and it will always be an honor to be her parents!

10/02/2011

The heart is free

Now the Lord is the Spirit: and where the Spirit of the Lord is, there the heart is free.
2 Corinthians 3:17

Your hands have made me, and given me form: give me wisdom, so that I may have knowledge of your teaching. Your worshippers will see me and be glad; because my hope has been in your word.
So that my way may be in a wide place: because my search has been for your orders.
Psalms 119:73-74; 45

Happy are the poor in spirit: for the kingdom of heaven is theirs.
Happy are those who are sad: for they will be comforted.
Happy are the gentle: for the earth will be their heritage.
Happy are those whose heart's desire is for righteousness: for they will have their desire.
Happy are those who have mercy: for they will be given mercy.
Happy are the clean in heart: for they will see God.
Happy are the peacemakers: for they will be named sons of God.
Mathew 5:3-9

3 comments:

Anonymous10/03/2011 10:47 AM
hi guys first of all say that they are very brave and I admire the love they have for Victoria the truth that she is a little person that taught her love every day and the importance of tenderness that is worth living much I admire them are great people really liked her and you are wonderful greetings from Argentina ... kisses
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G-boy10/19/2011 9:58 PM
Parabéns pelo amor e carinho que vocês dão a esse bebê. Isso que vale a pena. Ela demonstra ser uma criança fantástica. Gerson Boy - Nova Friburgo - RJ
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Seeker Nami10/23/2011 12:50 AM
I'm not sure how I got to your blog. But I'm very happy I did. This must be one of the most inspiring and beautiful stories of life I've ever seen. I always thought acrania was fatal. Yet your baby is alive and doing great! You're so brave. :) It's a prove of how love makes miracles!

She's so cute and I couldn't stop smiling tenderly at her photos and stories of life. I can only imagine how tiring it must be for you and Vitoria to go all around visiting doctors. But she's there, doing fine and seems like she's developing well! Really, I'm happy to see there are still humans with so much love to give and share. <3

I hope she'll have a happy life, with parent like you, I'm sure of it. :D
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Please let your comment here, or if you prefer, contact me through e-mail: joanaschmitz@yahoo.com.br
We thank all comments of encouragement and love.

A summary of our story...

Vitoria de Cristo was the most wonderful and precious gift we have received in this life. She was an immensely loved and special child, that brightened and rejoiced our lives during the 916 days she lived from her birth, with 38 weeks of gestational life. 2 and half years of an amazing miracle!

During her pregnancy she was diagnosed with acrania and was considered incompatible with extra uterine life. At birth she was diagnosed with anencephaly, diagnosis that came to be questioned over her growth due to her survival, all her reactions and expressions.

For us, names never made any difference. She has always been our victory and we always knew she was worthy of love simply by existing.

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The beginning of our story

On 12th week of pregnancy, we discovered our first and so wanted baby had a serious problem called acrania. There was no skull over her head, and brain structures would be damaged in contact with amniotic fluid, resulting in anencephaly. We were informed this kind of malformation is incompatible with life, and that our baby would certainly die right after birth. For this reason, we could ask legal permission to terminate pregnancy, according to Brazilian law.

Even though, we decided to believe that God could change this sentence and make the miracle of healing our baby, permitting her to survive after birth. We named her Vitoria de Cristo (Victory of Christ) and decided to love her the same way we have been loved by God: in a personal, individual and unconditional way.

And when she was born, we were surprised by a wonderful miracle, a precious life we have seen growing in front of our eyes, by God´s mercy.