Our Beloved Vitoria de Cristo

We created this blog to tell the world about our beloved daughter Vitoria, who with acrania and anencephaly, lived with us for wonderful 9 months of pregnancy and exciting 2 ½ years of life outside the womb. May everyone know about her sweetness and tenderness. About her life, humanity and dignity. All the precious lessons learned with this little angel that God has sent us. It was a joy to have her with us. Vitoria still lives in our hearts and it will always be an honor to be her parents!

10/19/2011

Amazing photos

Give me, your servant, the reward of life, so that I may keep your word;
Let my eyes be open to see the wonders of your law.
I am living in a strange land: do not let your teachings be kept secret from me.
My soul is broken with desire for your decisions at all times.
Salmos 119:17-20

I was delighted with the way I found her hands

and the pacifier...

be careful, I already have six teeth!

Mom, I don't like this seat belt holding me back...

uaaaahh!!!

I want out!

Relieved after I took her and then put her back in the stroller without the belt

her occupational therapist explained that it is important to use the belt on the stroller to improve her posture through proprioception - the sense of her own body.

She is still getting used to the idea

I put the teddy bear in her hand and she was holding it for a while!

5 comments:

Kara10/20/2011 5:53 AM
Beautiful Girl!!
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Rhonda Arnold10/26/2011 7:36 AM
Your daughter is absolutely beautiful.
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Float On and On and on...10/26/2011 11:04 PM
Hello Joana any updates on your miracle child?
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Gav11/09/2011 4:04 AM
I just manage to see your blog and know about your child! You have an amazingly beautiful child. God bless you and your family.
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Praying for you5/26/2014 8:16 AM
This is truly an awesome testimony of Jesus Christ in your life. You will be able to help others to hold on to life no matter what and to stand of the Word at all costs.
Yahweh God bless you and keep you!
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Please let your comment here, or if you prefer, contact me through e-mail: joanaschmitz@yahoo.com.br
We thank all comments of encouragement and love.

A summary of our story...

Vitoria de Cristo was the most wonderful and precious gift we have received in this life. She was an immensely loved and special child, that brightened and rejoiced our lives during the 916 days she lived from her birth, with 38 weeks of gestational life. 2 and half years of an amazing miracle!

During her pregnancy she was diagnosed with acrania and was considered incompatible with extra uterine life. At birth she was diagnosed with anencephaly, diagnosis that came to be questioned over her growth due to her survival, all her reactions and expressions.

For us, names never made any difference. She has always been our victory and we always knew she was worthy of love simply by existing.

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The beginning of our story

On 12th week of pregnancy, we discovered our first and so wanted baby had a serious problem called acrania. There was no skull over her head, and brain structures would be damaged in contact with amniotic fluid, resulting in anencephaly. We were informed this kind of malformation is incompatible with life, and that our baby would certainly die right after birth. For this reason, we could ask legal permission to terminate pregnancy, according to Brazilian law.

Even though, we decided to believe that God could change this sentence and make the miracle of healing our baby, permitting her to survive after birth. We named her Vitoria de Cristo (Victory of Christ) and decided to love her the same way we have been loved by God: in a personal, individual and unconditional way.

And when she was born, we were surprised by a wonderful miracle, a precious life we have seen growing in front of our eyes, by God´s mercy.