Our Beloved Vitoria de Cristo

We created this blog to tell the world about our beloved daughter Vitoria, who with acrania and anencephaly, lived with us for wonderful 9 months of pregnancy and exciting 2 ½ years of life outside the womb. May everyone know about her sweetness and tenderness. About her life, humanity and dignity. All the precious lessons learned with this little angel that God has sent us. It was a joy to have her with us. Vitoria still lives in our hearts and it will always be an honor to be her parents!

7/10/2011

Poor little nose!

A few weeks ago our beloved Victoria caught a cold, her nose was very congested and she was very angry. She was mad trying to breathe through her nose and failed, cried, fought, it was a mess!

I got worried because she didn't want to eat or drink, she cried and tried to grab the pacifier, but then she could not breathe and let out the pacifier, and then got more angry ...

are you seeing my hurt nose?

Throughout the days she was getting used with her congested nose, and she learned to breathe through her mouth with the pacifier.

she put her hand spontaneously to hold the mask

I did many inhalations with saline and aspirated her nose with a nasal aspirator, and thank God she got better and was able to eat. Poor little nose, it got very hurt!

sleeping in our bed

no one can take my pacifier!

and see what's here, making inhalation with a pacifier!

2 comments:

fabiana1/14/2012 2:48 PM
eu desejo toda sorte do mundo para vocês que deus ilumine toda sua família.
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fabiana1/14/2012 2:49 PM
que deus abençõe sempre essa família
e esteja sempre ao lado de todos vocês.
ficam com deus.
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We thank all comments of encouragement and love.

A summary of our story...

Vitoria de Cristo was the most wonderful and precious gift we have received in this life. She was an immensely loved and special child, that brightened and rejoiced our lives during the 916 days she lived from her birth, with 38 weeks of gestational life. 2 and half years of an amazing miracle!

During her pregnancy she was diagnosed with acrania and was considered incompatible with extra uterine life. At birth she was diagnosed with anencephaly, diagnosis that came to be questioned over her growth due to her survival, all her reactions and expressions.

For us, names never made any difference. She has always been our victory and we always knew she was worthy of love simply by existing.

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The beginning of our story

On 12th week of pregnancy, we discovered our first and so wanted baby had a serious problem called acrania. There was no skull over her head, and brain structures would be damaged in contact with amniotic fluid, resulting in anencephaly. We were informed this kind of malformation is incompatible with life, and that our baby would certainly die right after birth. For this reason, we could ask legal permission to terminate pregnancy, according to Brazilian law.

Even though, we decided to believe that God could change this sentence and make the miracle of healing our baby, permitting her to survive after birth. We named her Vitoria de Cristo (Victory of Christ) and decided to love her the same way we have been loved by God: in a personal, individual and unconditional way.

And when she was born, we were surprised by a wonderful miracle, a precious life we have seen growing in front of our eyes, by God´s mercy.