Our Beloved Vitoria de Cristo

We created this blog to tell the world about our beloved daughter Vitoria, who with acrania and anencephaly, lived with us for wonderful 9 months of pregnancy and exciting 2 ½ years of life outside the womb. May everyone know about her sweetness and tenderness. About her life, humanity and dignity. All the precious lessons learned with this little angel that God has sent us. It was a joy to have her with us. Vitoria still lives in our hearts and it will always be an honor to be her parents!

2/17/2010

One day after another

"Busquei o Senhor, e ele me respondeu; livrou-me de todos os meus temores.
Os que olham para ele estão radiantes de alegria; seus rostos jamais mostrarão decepção.
O anjo do Senhor é sentinela ao redor daqueles que o temem, e os livra.
Provem e vejam como o Senhor é bom.
Como é feliz o homem que nele se refugia!"
Salmo 34:4-5; 7-8

3 comments:

Anonymous2/18/2010 4:01 PM
Querida Joana,
estou muito emocionada com tudo que vocês estão passando. Só quero que saiba que nós todos estamos rezando muito por vocês três. Que deus continue executando Seu plano...
Beijos,
miche, chris e Michael
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Aretha2/19/2010 5:52 AM
Querida Vitória, vc. esta muito fofinha neste ensaio fotográfico. Espero em breve conhecê-la pessoalmente. Vc.esta sempre em nossas orações, portanto tb. em nosso coração.
Sinta-se beijada, pequena e grande Vitória.
Familia Estanislao
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Renata4/02/2010 5:29 PM
Joana,Boa Noite!!!
Como está lindo o Blog da nossa "AMADA", fico feliz em saber que acima de todas as coisas vcs confiam plenamente na excelência que é o nosso Senhor Jesus... A bíblia diz: Que todas as coisas cooperam para o bem daqueles que amam a DEUS, daqueles que são chamados segundo o seu propósito.(Rom 8;28)

Um Beijos Enorme
Da Tia Renata(UTI Neonatal S.Luiz Nortuno 2)
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A summary of our story...

Vitoria de Cristo was the most wonderful and precious gift we have received in this life. She was an immensely loved and special child, that brightened and rejoiced our lives during the 916 days she lived from her birth, with 38 weeks of gestational life. 2 and half years of an amazing miracle!

During her pregnancy she was diagnosed with acrania and was considered incompatible with extra uterine life. At birth she was diagnosed with anencephaly, diagnosis that came to be questioned over her growth due to her survival, all her reactions and expressions.

For us, names never made any difference. She has always been our victory and we always knew she was worthy of love simply by existing.

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The beginning of our story

On 12th week of pregnancy, we discovered our first and so wanted baby had a serious problem called acrania. There was no skull over her head, and brain structures would be damaged in contact with amniotic fluid, resulting in anencephaly. We were informed this kind of malformation is incompatible with life, and that our baby would certainly die right after birth. For this reason, we could ask legal permission to terminate pregnancy, according to Brazilian law.

Even though, we decided to believe that God could change this sentence and make the miracle of healing our baby, permitting her to survive after birth. We named her Vitoria de Cristo (Victory of Christ) and decided to love her the same way we have been loved by God: in a personal, individual and unconditional way.

And when she was born, we were surprised by a wonderful miracle, a precious life we have seen growing in front of our eyes, by God´s mercy.